Latest from the Blog
Self Care
The most difficult chore I have is self care. Being “formally” diagnosed 12 years ago, you would think I would have a better handle on self care, but I don’t, I am trying…. I have a habit of putting everyone before myself, whether that is to cook, clean or take care of. As I write…
Strange day 1/24/2021
Woke up really early and decided to go back to sleep (always a bad thing to do). Woke up a few more times and finally got out of the bed. Hmmm… feels like my legs are rubber, maybe just hungry. Buttered 1/2 of a sesame bagel, that Taylor bought for me yesterday, and made hot…
Remicade
I started Remicade infusions in October 2020. They wanted me to start April 2020, but Covid 19 was in the world and I did not feel safe. So, the 1st time i had the Remicade, They gave me Benadryl through the iv and my right chest started burning (I was told that the Benadryl was…
Get new content delivered directly to your inbox.
Sarcoidosis 