Self Care

The most difficult chore I have is self care. Being “formally” diagnosed 12 years ago, you would think I would have a better handle on self care, but I don’t, I am trying…. I have a habit of putting everyone before myself, whether that is to cook, clean or take care of. As I writeContinue reading “Self Care”



I started Remicade infusions in October 2020. They wanted me to start April 2020, but Covid 19 was in the world and I did not feel safe. So, the 1st time i had the Remicade, They gave me Benadryl through the iv and my right chest started burning (I was told that the Benadryl wasContinue reading “Remicade”


one thing I have learned from life, is to live life, have fun and don’t take anything seriously! Heading to the city today to see my Mohs surgeon. I’m still not healed…. But meeting Kristina for some shopping and girl time. It was nice to see Kristina and help her with her future job. Sadly,Continue reading “8/7/2019”


Today has been a high pain day, I don’t say anything because I don’t want the sympathy, I’ve never been that person. Spent most of the day on the couch and took a short nap. Pushed myself go to movies, too see “Mama Mia”, then dinner at Flo’s lunchonette. Had a hot dog with baconContinue reading “7/27/2019”

Hello and Welcome

My name is Cathleen and I have Sarcoidosis. It is a rare disease and that has been around since 1869. It is considered a “snowflake” disease, because no two people are alike and that is what makes this so difficult to not only diagnose, but to also come up with a cure. My blog willContinue reading “Hello and Welcome”

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